Steph has created the ALS Never Surrender foundation - a non-profit organization aimed at creating the first ALS BioMetric and Telemetry Patient Application by collecting real time data that will help in better understanding the disease. Scott, along with his husband and care-giver, Shaun, are advocates for those with ALS, attending events such as their recent trip to Washington DC last month to lobby for legislature that will help ALS patients.
All my friends will undoubtedly be hearing more from me as we begin what I think of as "Carpe Diem Season" and I start my fund-raising efforts. For now, I just wanted to meet Scott and Shaun and get myself invited onto their Minneapolis walk team, Marble's Marvels!
As is my weekly tradition, I'll keep this short and sweet and just end with some of my photos from the week.
|Wearing quilled earrings I'd bought from the Edina Art Fair.|
|Hanging out with a "Tater" at the Brooklyn Park Tater Days Festival|
|Checking out the Mississippi River!|
|Meeting Scott Marble|
|Dancing to Music by Boogie Wonderland|
|Riley Lake - Also played tennis at the park here!|