Sunday, December 01, 2019

Week 48: Host a #GivingTuesday campaign for ALS Never Surrender

Looking for a non-profit to help on Giving Tuesday?

Please donate to ALS Never Surrender on Tuesday, Dec. 3rd!

Goal #16 on my list of 60 is to: Participate in efforts to help those with ALS and their caregivers. Since losing my friend, Craig Dunham, to ALS in 2010, I've been a very active advocate for finding a cure to this fatal and heart-breaking disease.

I got involved with the ALS Never Surrender non-profit a few years ago and was inspired by the founder, Steph Courdin, who gathered a group of colleagues and volunteers to create a mobile app that would collect valuable ALS patient progression data.

Though Steph lost his battle with ALS in March of this year, I was so excited that the organization received a $300K 3-year grant from the ALS Association.  All Steph's efforts were not in vain. The organization is currently working with Harvard Medical, Duke University, UCSD, UC Denver, and Barrow Neurological Institute to run clinical trials across the country.

I usually raise money for the ALS Association by leading Team Carpe Diem on the Walk to Defeat ALS. However, this year, I'm working with ALS Never Surrender on a GivingTuesday Facebook campaign because Facebook will match all donations made on GivingTuesday, Dec.3rd!

I feel so lucky to have met Craig and Steph and to be able to see the progress being made towards a cure. I feel confident that, with this app, a cure is in sight! Please consider giving on December 3rd!

1 comment:

Anonymous said...

Thanks for the reminder...